Showing posts with label awareness. Show all posts
Showing posts with label awareness. Show all posts

Sunday, May 22, 2011

Mother's Day...great way to finish off #NIAW

Mother's Day...I really can't explain it.  I have a full on war raging within me...I am not as bitter of a person as I may seem on here, this is just my outlet.  In my head I get angry, depressed, concerned and paranoid about my potential emotional stability when entering circumstances...then, I'll get mad at myself for feeling that way, I'll start thinking I'm being irrational, too sensitive, and need to suck it up.

Three years ago, D and I were at our church for Mother's Day.  Didn't think too much of it.  I have always mentally focused solely on my mom on that day and growing up I never thought about being a part of it...and prior to that Sunday, the idea of it never really effected me.  Well, three years ago that dreaded day for the infertile couples in the world hit me so hard.  All the mother's get a flower when they enter the church...making it quite obvious who the mother's are and how many of them there are.  The sermon always is on mother's and parenting and children.  But this particular message, "Mother's Matter" (a pun since the series we were in was called Money Matters), maybe it was just the wording of it...but it caused me to see Mother's Day in a brighter light, and motherhood slightly differently as well.  My pastor had all of the mother's stand up...and then began to describe how important they are.  That they have been chosen and blessed with the responsibility of raising the future generations (I looked for a link to the sermon but couldn't find one that worked).  A couple rows in front of me was the cutest, little woman who was VERY pregnant, and beaming...I looked around and the people sitting were either children or men....I felt like the only married female NOT standing.  And, I suddenly felt so alone...so depressed...I started pleading with God, why? why not me?  ...ok, ok...now someone is going to get offend and say "God has a plan", and that I shouldn't talk to him that way.  Really? Well, my God...He's big enough to handle that.  He made me with my personality, He instilled this longing inside of me, He knows how much I'm aching, and He is my Creator so He knows I don't do well when I don't know the outcome...  Anyway, that alone depressed feeling initiated the emotions...after that each description of motherhood and parenting hit me harder and harder, the wounds got deeper and deeper......ever since, that one Sunday has stood out SO clearly in my mind, everytime I start struggling with the journey I remember that and I begin to think I will never be that...I will never get the opportunity to bear a child, to parent, to be honored for my struggles of raising children in our society, to feel the relationship with my child and the pride that comes with watching to see the adult they become.

I just yesterday went to lunch with ladies from my family...we do that once a month.  My great-aunt (my grandma's sister) was sitting there holding her 6 week old great-grandson...and someone made a comment about my cousin (who just recently married a woman with a child already), my mom said "your granddaughter *****, OH! wait, your...great-granddaughter"...and it sunk in, I was the first of our generation to get married (now there's five of us married) and after almost five years, I still haven't made my mom a grandma...and my grandma (despite her longing for it) is still not a great-grandmother...

My mother-in-law referred me to two podcasts from Focus on the Family. To my surprise, they really hit the nail on the head.  They even admitted that they are so often geared towards family and raising children, and infertility doesn't really ever come up, but it is a huge issue.  So, thank you Focus on the Family for stepping out of your box for a couple days. If you feel so inclined, you have the time, and would like to truely understand how I and others feel (though I so often can't express myself), listen to the links below...part one and two. They were the podcasts for May 9th and 10th...and I felt like their two guests (both infertility patients) were speaking FOR me.  It was incredible.  One of the guests is Marlo Schalesky...she's the author of Empty Womb, Aching Heart, one of the books I've been reading, and a huge advocate for infertility awareness.  The funny thing is the description of how one of them felt at church on Mother's Day was so clearly my experience...Please listen (despite the cheesy intro and conclusions that are so typical of "Christian radio"), and spread the awareness...

PART ONE
http://fotf.cdnetworks.net/fotf/mp3/fof_daily_broadcast/ffd_2011/2_april_may_june/ffd_20110509.mp3
PART TWO
http://fotf.cdnetworks.net/fotf/mp3/fof_daily_broadcast/ffd_2011/2_april_may_june/ffd_20110510.mp3



Thursday, April 28, 2011

#NIAW - Bust A Myth - "you're just not hitting it right"

Resolve (the National Center for Infertility) has people blogging about infertility myths to burst the bubbles of those who use them like water. I've read a couple interesting ones...for example (one we've all heard), "You're young, you still have plenty of time"...As I commented on my facebook, D and I originally wanted four kids.  Yes, we are still relatively young, at age 28 and 27.  But, at this stage we will likely have at least more years of treatment before conceiving...the FIRST.  At this point we will be at 30.  If we settle with two or three kids and space them properly (about two to three years in between), when we reach the age of 40 we will have three kids under the age of TEN, one of which will still be either an infant or toddler.  When my parents hit 40...I WAS A HIGH SCHOOLER!  All this doesn't even touch upon the risk factors that go into conception, carrying, and birthing for women beyond the age of 35.  So, I will respectfully reject the notion that we "have plenty of time"...we may still feel like newlyweds, but we've been married for 5 years and have been TTC almost that entire time...the next 7-8 year window before I reach 35 will close quickly.

Now, onto the myth I wanted to address.  "You're probably just not hitting it at the right time".  Really?  Those are some incredible odds...FIVE YEARS and we have only once "hit it right".  No, I'm sorry...but no matter how many times we time it exactly right, it's not just going to happen suddenly.  Remember, the definition of infertility is "a year or more of unprotected sex".  They provide that 12 month window to rule out variables such as timing.  No, once you are diagnosed with infertility whether explained or not, there is something larger at play than timing.

The funny thing, is that despite the fact that our journey is approaching five years, (four years this month since I've seen a positive pregnancy test), and the fact that they have found and identified a few legitimate issues I still hear this "helpful advice" from those closest to me.  I have PCOS and Prolactinemia.  Two legitimate issues that don't just one day decide to stop blocking pregnancy just because we timed it right this month.  Until, we figure out how to treat these (since there is no cure for either), we will not be successful.  And even at that point we may find that there are other factors as well.

This just made me think of an age old saying, "If you can't think of anything nice to say, don't say anything at all".  Those of us in the infertile community are struggling with this issue enough that in addition to the medical advice we are receiving from medical professionals, we are doing research on our own, and know more about the way the female body works (thanks to our issues) than the general public does.  We need to spread awareness, not only so that this disease becomes a NON-taboo topic, but also so that the public does not naively think that because they were fertile and were successful in their TTC attempts that they know better and are the proper people to give advice.......regardless of how well intended the advice may be.

Tuesday, April 26, 2011

#NIAW

Well, for today's Facebook lesson for #NIAW I shared that approximately 1/3 of couples experiencing infertility deal with female issues, about a third are male factors, roughly 20% are unexplained, and the remaining are both male and female complications...I also shared something someone posted on RESOLVES Facebook page: the 1 in 8 ratio means that about 12 of every 100 Facebook friends are suffering from infertility! Those are big odds...

I never really thought about that myself, I know of a couple friends but not somewhere around 36 of them! It makes me feel not so alone, and yet makes me realize that there's people suffering in silence out there!

Monday, April 25, 2011

#NIAW - National Infertility Awareness Week

This week is National Infertility Awareness Week...So, I am sharing an educational nugget each day on my facebook page.  Today I posted the definition of infertility:  the inability to conceive or carry a child to term after a year or more without contraceptives.  And that 1 in 8 US couples of child-bearing age are diagnosed with infertility.  I added the RESOLVE Twibbon to my twitter and facebook profile pictures...

So, far I have had a couple friends "like" or comment on facebook...but we shall see...by the end of the week, I hope that all my facebook friends will be a little less naive about infertility and the fact that I am 1 in 8.

Monday, December 27, 2010

Oh, the Holidays

Christmas time is such a fun time...I become a little kid during the holidays. I get this from my mom! The one thing I've been really pleased with along our infertility struggle has been that it hasn't ruined the holidays for me. I love fall and winter for what they are and enjoy them all by myself! Most couples really struggle during this time (like with mothers day and fathers day) because it feels like another reminder that the holidays are not quite as meaningful because Christmas is somewhat a childs holiday...

Well, this is the first year that Christmas has brought feelings of depression and that "another year" has passed...another Christmas without a family photo card, without a happy announcement or something exciting to discuss with people at parties. And because my crazy brain functions the way it does...I start rabbit trailing, "and if we don't get pregnant soon we may be pregnant but not have a baby by next Christmas either!"  (Yes, I know, I'm a wreck). Luckily, this year, I was able to get a seasonal job...so I have been working alot over the last month or so...and I think that's the only reason why I haven't had a huge break down just yet. But, we have definitely moved into the next stage of dealing with this...D this summer started feeling the burden as well, and now after Thanksgiving and Christmas I know the holidays are somewhat challenging to get through as well...

Lord, please provide relief soon, we are so weary...

Saturday, November 27, 2010

Thanksgiving

Well, I've graduated into the next tier of the infertility journey...holidays and family events. OYE!

This year, for Thanksgiving we were with my mom's side...large family, warm and loud environment. It's definitely a postcard picture of what holidays with family looks like.  Well, shortly after D and I get there...we were sitting visiting with my cousins and my grandma. My cousin and I are one year apart, and were pretty close growing up, we graduated (same grade) from the same high school, and he celebrated his one year anniversary with his wife this year. My grandma (knowing a little of my situation and a little of my cousin and his wife's position about not being ready to have babies just yet), turned to him and started asking him questions about when and so on. This spurs a self-defense mechanism and he turns and says "Me? What about her?" and points to me........you know, no matter how many quick comebacks I come up with and how many times I convince myself "the next time someone does ___ I will have something to say about it", I always end up sitting there stunned..........well, I just sat there and stared at him, then I looked at my grandma (rather pitifully) and she hugged me, turned to him and said "She's working on it, she can't help it."

OF COURSE, my cousin is the sweetest guy alive and would never dream of being rude or insensitive about anything...and his face when grandma said that told it all, he knew he went somewhere he shouldn't have...but really? Why do people ASSUME? Why not ask first? I have always put this barrier up at family parties preparing myself for things like that...and the most I've ever gotten is a couple questions about when we were planning to start, but here we are...it has begun.  We are no longer the only ones of our generation married. Including our extended family two couples were married last summer and one more is getting married this coming spring. The race is on...to make our mothers grandmothers, our grandmothers great-grandmothers. And the fact that one of the couples (which obviously is NOT my cousin and his wife) is half way through their pregnancy has woken everyone up and caused the pressure and third degree to be on the rest of us.

So, oh well, he didn't mean it...he didn't know what he was saying...AND, surprisingly, grandma came to my defense when I was speechless.

Well, my cousin and his wife live a few hours away and they were staying through the weekend, so we planned to have dinner with them two days later before they headed out of town (first couples thing we'd ever done with them). Well, we were all ready and at first couldn't figure out what the plans were, then they changed slightly (to dessert instead of dinner), then when we met up with them it because an us, my brother, and all my cousins outting...when we got back to play games, his wife was preoccupied with something and wouldn't come near us. Fine, whatever, I can sympathize with moodiness or melancholy. Well, D went out to the kitchen to get something to drink and my aunt and cousins wife were having a tift about "babies" and whatever they were saying they dragged me into it and hushed up as soon as D walked in the room.  Really? How old are we again?

Let me make this quite clear: IF YOU DON'T KNOW OUR SITUATION OR DON'T UNDERSTAND IT..........ASK!!!!  I'm just at my wits end over this...I don't know what to do...I'm so tired of the situation itself, and I try to be very understanding of everyone else when I start having a emotional attack over it (whether that mean changing the subject or leaving the room or simply being non-chalant over peoples comments...the last thing I want to do is make other people uncomfortable or feel like they're walking on egg shells)...but, is it too selfish to ask people to talk to me about it? or to have a little shred of sensitivity about the issue, that they just may not know the whole situation? We have not waited four years to have a baby because we don't want to or it's too soon...we had a miscarriage 3 1/2 years ago and have had no luck since...

Saturday, November 13, 2010

Where are You, Lord?

My family has been dealing with alot of waiting on the Lord lately.  One of my aunts has been battling cancer for eight years (as long as I've known D!). She had ovarian cancer, and the stage we caught it in was so progressed...I had a high school friend who's mom was in the same stage, discovered a month after my aunts, her tumor was a bit smaller than my aunts, and she passed away a month later. My aunt is a testimony to modern day miracles that the Lord performs, and His healing power. She's never been free, entirely, of it...and it's been getting worse. It's in her lungs and liver now, chemo doesn't seem to be having the effect on her counts that it has in the past...and we are praying for more miracles and more options (as, after eight years, the treatment options have run scarce).

My amazing aunt holds out that she believes she is enduring all of this for a reason. That there is a greater purpose to this major trial that has not played out yet. We all believe this, and there is a multitude of faithful believers in my family, and prayer warriors...and despite the fact that we all keep praying we are all beginning to ask God..."Where are You...do You hear us?  Please answer us soon!" Now, our feelings of this don't change the fact that we know God doesn't leave our side...we also know that He is capable but is not required to do anything...we also know that He always answers our prayers ~ perhaps just not the way we would like Him to.  I firmly believe that regardless of the outcome, my aunt situation will serve a higher purpose and God will use it in an amazing way...we all of course hope and pray that this means He, once again, does something miraculous and ultimately heals her. However, His purpose could be served otherwise, He could answer with a "no" and the whole thing could work out in an amazing way for the good anyhow.  Our thoughts are not His thoughts, our ways are not His ways...and we cannot see what He has in store...it's in His hands, we just pray fervently, but ultimately His will be done.


Weird...I was talking about that all with my mom this afternoon. She has been praying so faithfully for miracles, for healing. And she is waiting on Him to move. And she is beginning to ask "Lord...where are You...?" This evening, I found out some wonderful news for a friend of mine. She told me a couple weeks ago that she was pregnant. Well, today she found out it's twins......  D had the same thought I did- one wasn't enough?  Heh, as horrible as I feel for thinking that, because I am overjoyed and it's an amazing thought to me for her and her husband...it was, sadly, more or less aimed at God. Yes, I have that kind of relationship with Him. He's my Father. He knows me better than I know myself. He made me, temper and hormones and all...and He knows His plans for me...but I don't...and I'm tired, and sad, and frustrated, and I'm wondering if He's listening (even though I know He's right here holding me as I cry...and throwing my little tantrum). And though OBVIOUSLY I am not dying (or at least, not that I know of physically), and I am not going through the type of pain my aunt is. But, a friend said something comforting to me this week...as I progress on my journey of realizing and not denying the situation I am in..."pain is pain"...it's ok for me to feel pained by this- thank you Charlene...you don't know what that means, especially coming from you! :)  I still feel so alone in it. That I am the lone voice crying to God and pleading to Him...petitioning for a baby. I'm wondering why it is that my mom seems to think I make all of this up...that these feelings are over dramatized in some way. I wonder if she prays for a baby for us, if she's hurting for me...the way she hurts for others around her. I know her and her sister and her mother were all of the "fertile mertile" variety...but I long so badly to help infertility awareness in my family. But somehow everytime I attempt to discuss it, the issue seems to be thrown into a "Megs is a hypochondriac" category...or something...Really? I am not making this up!

Well, I started out asking God why?
"Why me?"
"Why do I have to deal with this?"
"Why can't this end?" 
And through up and downs and periods where I am handling the whole thing well, I have come to the point of...
"Lord, are You there?"
"Are You listening?"
"Are You going to answer me?"

I have no idea, not even the faintest, of how people without Christ get through this mess...because with Him I feel lost. I am clinging to Him every moment of every day...not just to get D and I through the trials we seem to continue to trudge along through...but through each moment that passes thinking that it's another moment lost...  I feel like I fall farther and farther behind- more than four years of marriage (as of August)...four years of no birth control (as of October)...and we've been trying ever since our miscarriage in April 2007 (yes, it really was a miscarriage, I had two positive pregnancy tests and the nurse when I started bleeding confirmed that I had miscarried...I didn't make it up)...we sought help in February 2009, since we finally had health care, and as we felt we were getting somewhere-lost the health care. 

What now Lord?  How long?  How long until I have a happy announcement that You have blessed us with a life growing inside me? ('cause yes, that's where I stand on that issue as well)  How long until my baby bump is happily in my way?  How long until I endure the aches and pains knowing my baby is growing and getting ready to enter this world?  How long until I get to be the new mommy in the maternity ward?  How long until I can make D the tired daddy passed out with a newborn on his chest?

I know, I know...this is SO depressing.  But, let me remind you...this is my "journal" through my infertility journey. I am sharing RAW feelings of what I am going through: physically, emotionally, mentally, and spiritually. I am sharing it on here because one huge thing that helped me through last year as I tried to open up about it was reading other peoples stories, books with testimonials, other patients REAL feelings, and being able to admit my own feelings...and I realized I'm not alone, I'm not crazy (though everyone around me may think so). There are other women out there enduring the same wretched thing...so, here I am...another voice...another infertility blog...another wanna-be-mommy...just trying to help those who are on this journey also, and spread awareness to those who aren't, and be able to vent and rant and rave about what I am experiencing...before I burst a blood vessel!

Friday, October 15, 2010

My Facebook has turned into BabyBook...

Has anyone else been experiencing this recently?

Oye...and I thought it was bad about two years ago when every week seemed like a new pregnancy announcement...NOW!!! Every week is: "my baby's turning one", "new family photos", "I'm pregnant", "baby #2 is almost here", "found out we are having a girl!", "our daughter is going to be a big sister"...wow...so, what you're saying is that I not only got left in the dust with the first (and some people's second) round of baby bumps, but now the second round is about to pop also? so now two kids and on to the third...???

Ya, as if I didn't feel like every AF I get was another missed opportunity, or another month prolonged before I'd hold a baby of my own...but now it feels like everything else is speading forward and progressing, and I'm standing still. Not much has changed for DH and I in the last few years...sure, we've matured, and we have experienced and been through ALOT!  But, every step we take forward, we seem to take at least one back...  Yes, yes...I can hear your thoughts now (I've heard it all before): "it's just not your time", "your time is not necessarily everyone elses timing", "it'll happen", "you're still young", "maybe you're just hitting it wrong", "now probably isn't the best time anyway..."

...well, honestly, do you REALLY think any of that is helpful???  Do you REALLY think that I am not in enough agony to be trying to convince myself of all those things to make it better???  AND! Do you REALLY think that saying "now's probably not the best time" makes me want a child, and to be a mother, and to make my husband a father any less???

I have heard this from alot of people lately (mostly people with other forms of cancer), that it is wonderful that Breast Cancer has broken free of taboo. That awareness is everywhere! That there isn't just a nationally recognized awareness month, but that EVERYTHING turns pink during October, showing the support from so many reputable companies all over the world.  But what about the rest of us?  I have a dear high school friend who's sister has AngioSarcoma. A VERY rare and very agressive cancer. What about her? They have no awareness month...searching for it on google turns up almost nothing...I found a comment someone made on a site about the ribbon being yellow with a sunflower on it, but found NOTHING else to support that......how do you think they feel seeing the sea of pink in October? (even if you are a girl that likes pink)

Well, I do not have a life threatening illness...so after that last paragraph it seems trivial to even type this...but I feel a small fraction of that exclusion. What about infertility???  Infertility IS still taboo! I have almost no one that I can talk to about what I am feeling, or going through...or how depressed I am or how my heart is aching.  I know now it's no longer an issue of me being too secretive about it. I have worked really hard over the last year to not belittle the issue, to talk openly about it, to share with our family about where we are at...and here we stand. PCOS (being that it is an actual physical condition that seems more tangible) has a ribbon...it's teal. September is PCOS awareness month. Well, that is at least part of my problem, but infertility in general just seemed to get lumped with it...and would you have known that TEAL was the awareness color last month if I hadn't said something???

...between facebook over the last two-three months, and the widespread discussion of breast cancer awareness saturating the "awareness" of the public...I have felt exceedingly like a person standing in a room screaming...standing still...the whole world flying by me...and I can barely move...

Friday, July 9, 2010

Empty Womb, Aching Heart

so, i am about half way through my latest infertility book...empty womb, aching heart...and i am really enjoying it. each of the chapters are someone elses story of an event they experienced. it is really encouraging and reassuring, that none of us are alone in this journey.

a couple nights ago this was the chapter i read, and felt it was a good example of how the "support" individual feels, and how we would like them to react to the issue:


Photobucket
Chapter Nine
Marriage: Nothing I Do Helps
Michael, age 36

I gripped the steering wheel, clenched my teeth, and turned the ignition key in my Ford F150. Sput, sput, vroooom. I smiled as the engine began to purr like a contented tiger. Four hours under the hood had paid off. The truck was as good as new. I sat back and wiped an oily hand across my forehead. Who needed those guys at the repair shop? After all, I was Mr. Fix-It, an engineer, a problem-solver. And right now, after hours of being up to my elbows in grease and macinery, I felt like I could fix anything.

I sauntered into the garage and began to scrub my hands with a coarse cleanser. A dozen things neeed to be repaired today. There was the bathroom faucet, the loose leg on the dining room chair, and that squeaky brake on Shannon's mountain bike. Or maybe should I tackle the problem with the sliding door lock. I rubbed my hands together. Today would be a good day. Nothing made me feel better than getting in there and making things work.

After a moments thought, I decided to attack the faucet. I gathered my tools and headed toward the bathroom. A leaky faucet would be no match for me today. I opened the door, hiked up my pants, and dropped to one knee to begin clearing out the stuff under the sink. No sooner did I get my wrench onto the pipe than I heard the sound of sobbing coming from the other room. Oh no, I thought. Not again.

I knew what it was before I reached the master bathroom. As I pushed open the door, I could see my wife sitting on the edge of the tub in the bathroom. When I went in to see what the trouble was, I saw a pregnancy test stick lying on the counter. I knew from experience it was negative--again. I closed my eyes and prayed for strength. We had been so sure that this would be the month. Disappointment rose in my throat. Quickly I suppressed the feeling. I had to be the strong one. I had to fix this problem.

This month had been the third time we'd undergone intrauterine insemination. We had planned to try it only three times. The doctor had told us that if IUI didn't work in the first three tries, it probably wouldn't work at all. Now we'd have to consider IVF, a procedure we couldn't afford.

I stood there for what seemed a long time, staring at the pregnancy test, my mind racing. I had to make this better. I needed to figure out what to do.

"This isn't the end of the world," I commented lamely.
My wife didn't even look at me. She only answered by crying harder.
"Maybe the test is wrong."
"I t-tried it twice," she sobbed.
"Maybe the doctor blew it," I suggested. "I think we should try another clinic."
"Nooo," Shannon wailed.

I ran my fingers through my hair and paced back and forth. "Okay, then, maybe we should try one more time. Or maybe we could get a loan for an IVF."
"It's no use," Shannon cried. "Nothing's ever going to work. We're never going to have a baby."
"That's silly," I replied in my most matter-of-fact tone. "Of course we are. If we have to go to the ends of the earth, we'll make this work."
Shannon glared up at me. "This is not like one of your broken-down cars, Michael. You can't just turn a wrench and make it work. Don't you understand?"

She stormed out of the room without a backward glance. What was wrong with her? Didn't she see that I was trying to help? Whatever I said always seemed to backfire. For five years we had traveled this rocky path called infertility. And in all that time I felt we'd made no progress. We were no closer to understanding why we couldn't conceive. The doctors didn't give us straight answers--only possibilities and statistical probabilities. No matter how much I studied the subject, no matter how many Web sites I visited, I couldn't seem to find a logical series of steps toward our goal of starting a family.

And lately when I talked to Shannon about the subject, our conversations always ended in turmoil. Nothing I said helped. I tried to be positive. I tried to suggest solutions I thought might work, but it only seemed to make her angry. It just didn't make sense. She didn't make sense.

Of course, I realized that the whole treatment process was more difficult for her. After all, I wasn't the one constantly being poked and prodded. But it wasn't easy for me, either. Still, at every step in the process I tried to be the rock--the one who took the positive side. My objectivity seemed helpful at first, but these days even my most reasonable suggestions were met with tears.

Infertility ought to be like a Ford F150, I thought. Then i could fix it. If I could just find the right tools, turn the proper bolts, replace the correct parts, everything would work again, just as it should.

For at least an hour I sat in the bathroom and searched for answers. But nothing came to me. Maybe Shannon was right. IUI would probably never work, and where could we even hope to find the money for more expensive procedures, procedures that weren't guaranteed to work any better than the IUI? What if this problem could never be fixed? What would I do then?

My stomach tightened at the thought. I decided to return to the guest bathroom, where life made sense. With a wrench in my hand, I knew what to do to make things right.

The next week dragged by. We went about our business without saying two words about the problem. I came from work and fixed things. She buried herself in work and in her spare time read her favorite novels again and again.

That week I fixed just about everything that needed fixing and more. I organized my garage and designed a new shelving system. I made the sprinkler system more efficient and gave the dogs two baths. But nothing helped. Repairing the bathroom faucet didn't fix my wife's broken heart. Redesigning a sprinkler system couldn't erase the pain I saw in her eyes. But what else could I do? She wouldn't let me help her. She wouldn't listen to my advise.

Since working around the house didn't solve our problems, I decided to take a short trip. My friend Pete had been bugging me to go duck hunting with him. But Shannon and I had been so immersed in infertility treatments that I hadn't considered going. Until now.

Duck hunting can be truly exciting--when the birds are flying. I could often shoot off two or three boxes of shells in one day. But slow days afforded plenty of time for reflection. Too much time. This particular day was dark with fog, perfect duck hunting weather--wet and cold. We set out our decoys and settled down out of sight, just in time for the opening shoot at 6:56 am

As the fog bank around us became illuminated by the first morning light, we searched the sky. But no ducks appeared. So we began to blow on our duck calls, hoping to attract birds flying above the fog. Still no ducks. The precious first moments of the day slipped by without sighting one bird. At this rate, it was going to be a long, dull day. Or so I thought.

Pete and I stood hidden in the reeds for the next two hours with our feet immersed in near-freezing pond water. My neoprene waders kept the water out, but I wished that I'd worn woolen socks. Pete, a wise man and a member of our church board for as long as I could remember, was not much for conversation. But it was he who broke the silence: "Why did you decide to come with me this weekend?"

"Oh, I just wanted to get away for a little while," I sighed.
Pete looked at me for a moment.
I shifted uncomfortably.
Finally he spoke again: "So how are you and Shannon doing with that infertility stuff?"
"Humph," I grunted. "Don't ask."
Pete nodded. "Seems to me like conception is a lot like duck hunting. The conditions may seem right. You can set out your decoys and blow your duck calls. But there's nothing you can do to make the birds come in. Must be hard, especially for you."

Pete's analogy was pretty good. He was right, of course. I couldn't fix our infertility problems any more than I could make the ducks fly. And that left me feeling frustrated and confused. "So what do I do? If I can't fix the problem, why even try?"

Pete answered with one simple phrase. It rings in my ears even now, even though he said it under his breath: "Sounds kind of selfish."

At first I had no idea what he was talking about. But a cold duck pond has a way of enabling self-reflection. As the hours passed I continued to think about Pete's comment. I didn't ask him about it. Nor did he offer any explanation. But my thoughts turned to Shannon.

Maybe all my attempts to solve the problem were for my own benefit. My concerns were centered on the fact that I couldn't do much to help the process or to alter my feelings of helplessness. But what about Shannon? What did she need from me? Apparently she didn't need my poorly conceived solutions or my attempts to try to figure out how to make everything all right. Mr. Fix-It just wasn't helpful. But she did need something from me. She needed someone to stand with her in this.

My thoughts turned again to duck hunting. On days like today, when I couldn't bring the birds in, I didn't stomp off angry and give up. I waited. I hunched down in the reeds, watched, and listened. I was patient. I was hopeful. I was ready for action.

Maybe that's how I needed to be with our infertility situation. Maybe I just needed to be with her, wait with her, sit quietly beside her and listen to her pain. Maybe all she needed was to know that I cared.

I cleared my throat. "Hey, man," I said. "I think I need to go home now."
Pete nodded. "I understand."

The trip home was the longest eighty miles I'd ever driven. I didn't waste any time getting into the house. I don't even remember specifically what I said to her, but it went something like this: "Shannon, please forgive me for being so selfish. I truly don't know how to fix our infertility problem. I can't fix it. But one thing I do promise: I will be with you through it all. And I love you more than anything."

Tears sprang to Shannon's eyes. "I don't need you to try to fix it," she said. "All I want is for you to be there when I'm hurting. All I need is for you to understand."
I took her in my arms and kissed her forehead. "It's a deal," I whispered.

That day I learned that sometimes what I call doing nothing is doing something in Shannon's eyes. Sometimes all I can do is take her in my arms and say, "I understand and I love you." Sometimes all she needs is my shoulder to cry on.

As the months and years wear on, infertility hasn't become easier for us. Nor have we found any simple solutions. We're still putting out our decoys and blowing on our duck calls. But one thing is different. We're now able to love and support each other through this difficult process as we wait to see whether "a bird will fly overhead."
Photobucket


so many of the things in this book are applicable (even to me, who is not far into my infertility journey compard to most) to some degree...and knowing that someone else wrote these words, that are exactly how i am feeling is comforting.

i would greatly suggest this book for anyone who wants to understand more about what we experience and think, or simply to those that want to know that they aren't alone in their thoughts. no medical advice, no spiritual advice...simply testimonials from others who are struggling...

Monday, June 7, 2010

allowing yourself to grieve and cry

in finishing the last book i was reading, and moving on to the next, i've been reading alot about how part of dealing with the grief of miscarriage and infertility is acknowledging that your pain is real and that the grief you feel is real. i feel like this is alot of the reason i've been struggling lately...

i completely agree with alot of what people have said (and already knew it and have told myself all these things so i don't need "instructions"), but that, obviously, we have not begun to exhaust all the options...that, obviously, we've only been married four years and are still young...that, obviously, God's timing is not our timing and if His plan is to bless us, He will in His timing. well, i am aware of all that. and as much as other people see this as "encouragement" and "advice"...it's not. i can't express how often all the cliche pep talks that infertility patients receive are on my mind...as a matter of fact, as i try to hold myself together and "suck it up", i am giving myself these pep talks and motivational speaches- every day! so, of course, the last thing that is going to be encouraging is when i finally open up about how i'm feeling for someone to say all of this fluff to me, whether it be because they think they know or they haven't a clue what to say...rather than just saying sorry, or listening, or hugging, or i'm praying...it's amazing how much further those words go. infertile couples are looking for support and love, not "words of wisdom" and advise (particularly from the fertile community).

well, as i said before, i'm at a point where i feel like i need to talk about where i'm at...holding it in and keeping it private is killing me from the inside. so, when yet another person announces pregnancy if my mom happens to ask how my day was...well, i can't lie and say it went alright...no, i was a basket case all day, i then proceeded to blog about it, research, and read about it and find any support i could. the end result usually ends in said advice. or some of the comments i shared in my other post ...awareness...  well, i need to grieve. i am simply attempting to be productive in dealing with the situation i am in...and a huge part of that grieving process is saying that grief is justified.

i called in to work sick on April 11, 2007...my husband ran to the store that evening and grabbed a two-pack of digital pregnancy tests. i took one...positive. we took a second, just to be sure...positive. i proceeded to take a photo of the stick that read "pregnant" on it and emailed it to our parents and my college roommates. when we went to bed that night i layed awake all night ecstatic, i had been fearful (for absolutely no reason) of infertility when i was in college. the next morning, knowing that my nausea was a life not sickness, i went to work. people knew. that was the first thing about three people said to me when i saw them that morning! i was affirmed that it was evident all afternoon...ecstatic. it was a hectic day and i was rushing around, we were out of shopping bags so i went and grabbed a few huge boxes and started unloading them near the registers. about 20 minutes later i was feeling funny...then pain...then i had a weird feeling something was wrong...i went into the restroom, blood. i took my lunch and i freaked out and called my mom, then called and scheduled an appointment with the RN at the family practice i'd been to a few times...i left work early and called the hubbs to meet me. i had miscarried. she said (according to my cycle) i was about 5 weeks along, but with the pregnancy tests (which are as accurate as the ones they give, she said) and what she could tell from the exam, though they had not confirmed the pregnancy, it was a miscarriage. i was devastated.

so, am i not allowed to grieve because i only knew for 24 hours? yes i am! does it hurt any less saying, it was a very early term miscarriage? no, it doesn't.  did it hurt going to work the next day not wanting to talk about it and having people say, it's probably a boy- they give you alot of trouble, and having to say no it's not i lost it? umm, ya... though i didn't know very long, though this was three years ago, though it was early term and we probably would not have even known about it if it weren't for advances in home testing systems...it crushed me. i cried for days about it, which now i would probably have more support, but even D back then couldn't understand what was wrong with me.

every couple feels this grief...to one degree or another. even those who have only had the infertility side and no miscarriages have experienced the grief of loss...the loss of the child they long for. couples that have spent thousands on treatment and had multiple miscarriages have experienced the grief of loss...the loss of multiple children they had sacrificed so they could conceive and did, only to lose them. everyone in this sad community i am a part of has experienced grief, and must acknowledge that it is ok to grieve, to be sad, to cry! it's the only way to ever deal with that pain. well, i have been making an attempt- even just for self-preservation -and instead of acting like "oh well it was really really early" or "we barely even knew for 24 hours" (which are both things i've said), i am validating it by "when i lost my pregnancy" or simply talking about it in april with my husband...our baby would have been a little over two years old this april. and i realized that i don't really have receptive parties on the other end...allowing me to talk about it, and validating it with me. i get the "its not that bad" "other people have it worse" "i think you're probably just hitting it at the wrong time" and even "are you sure you were even pregnant" responses.

...so, infertile women...as much as it hurts, share AWARENESS with your friends and family...be open to them, and honest with them. (i got this from the book When Empty Arms Become a Heavy Burden)-- think of this: in sharing pregnancy and then the following miscarriage would you rather, a) hide the pregnancy until you're sure, and then after the following miscarriage have to say "oh, i was pregnant, but we lost the baby" and have a response of "at least you know you can get pregnant" OR b) share immediately and have people be overjoyed with you and then when you share the loss have people supporting you and grieving with you? allow yourself to grieve, allow yourself to CRY! when you speak of your children, speak of them as that...you are mothers, whether for a breif period of time or only with a mothers heart, you are mothers. have your spouse share in this awareness as well, you have to have a support group around you...the loneliness of infertility is bad enough, but braving it alone is worse. and most of all be vulnerable and ask for prayer...you'll be amazed by the support you receive.

Friday, June 4, 2010

...awareness...

something i am struggling so greatly with right now is how to approach this subject. on my side; it is a very tender wound that i cry about when i start to talk about it, so i don't. i avoid all circumstances that could make me comment on a baby. Mr. D and i were visiting family, i was sharing about how many resumes i have submitted and not received replies...the response was "have a baby, that'll keep you busy"...well, obviously we have not shared with this person our situation and struggle. my first thought was, wow- if only it were that simple...you have no idea how much i wish that could happen! i just said, "ya, i wish"...and Mr. D quickly changed the subject. however open i may be about everything else that happens to us that we need prayer for (maybe to a TMI extent), i just can't seem to open up about this. about a year ago, i was feeling convicted and that God was teaching me to be more humble and let go. so, i typed a long letter about our current situation, my feelings, some quotes from When Empty Arms Become a Heavy Burden, and enclosed some verses and was going to send it to our family and friends asking for love and prayer...never sent it.

here's my struggle...i am at an emotional state, at this point, that i need those around me to be aware and understanding (though most can't fully understand). i just have not succeeded in explaining. very close and dear members of my family, whom i attempt to vent to and am simply looking for a loving shoulder say things such as "really? i don't think you really had a miscarriage." (well, even though we had just had the positive test and had not verified the pregnancy, i went in for a doctors appointment the day i started bleeding and confirmed that because we had two positives at home and according to my exam, yes i'd miscarried), or "well, if that had been a successful pregnancy, think of how hard the last couple years would have been." (so, what you're saying is that i should be greatful i lost my baby? if that had been God's timing for us, yes things would have been different, but we would have dealt with it and the infertility burden would not have been plaguing us this whole time), and a recent one "really? i don't think you want a baby right now, that would be hard on you and your situation." (really? so, because God has been pulling us through trying times in the last year-and-a-half that means i should want a baby less? that if i had a baby, i'd not want it?...sure, there would have been some extra strain, however it would have rid us of a HUGE burden that we've carried along the way, and seeing God's provisions so evidently in our life i know He would have provided)

on the family side; there are so many issues..."fertile mertyles" plague my side, also the idea that i am a sensitive and emotional person- so i am likely exaggerating the issue. my family is all pretty private as well, so attempting to express the strain of the tests and the whole process of it all usually leads to either not getting the point across or people thinking i'm being a little too open.

with my firends; well everyone is either not married, popping out babies, or not trying (even people we thought were not trying are popping out babies). i really don't feel comfortable sharing with anyone...and when i do i feel like the pathetic person with diarreah-of-the-mouth trying to make people feel sorry for me.

i know we are in a hang stage where we can't be proactive about it at the moment, and i know we have not come close to exhausting the options...but this applies regardless of the severity of the situation...because infertility hurts, the pain is real~
i found this video on the Hannah's Prayer Ministries web site. please watch, it is a fertility patients plea to family and friends for support and understanding that has become a tool for spreading awareness of infertility




i also found this "checklist"...or help list...for people who have loved ones facing infertility, i thought the points were very good.

Helping a Loved One with Infertility
Suggestions:


  • Unless you are a very close friend, don’t ask specifics such as, “What day do you have the pregnancy test?,” or “What day will you do the artificial insemination?” Simply saying, “I’m praying for you,” “We’re thinking of you,” or “Please let us know if there’s anything we can do,” are all appropriate ways to show your interest without putting her on the spot.


  • If possible, do not surprise her by making a big announcement that you’re pregnant. While it is appropriate for you to be excited and want to share your news in a big way, consider telling her privately first and letting her know when you plan to share your news.


  • Do not ask her any questions about infertility around other people.


  • The childless couple may feel “out of place” at child-centered family events like family vacations, Easter egg hunts, children’s birthday parties, etc. Absolutely invite them, but don’t make them explain why they declined the invitation.


  • Offering to ride with her or drive her to appointments would be appreciated. People often have to drive over an hour to the nearest infertility clinic.


  • If you say something to her and think later that maybe you shouldn’t have said it, call her and apologize. It will mean al lot to her.


  • Definitely invite her to baby showers and let her know when a baby has been born, but don’t expect her to attend those events. Besides feeling very uncomfortable herself, she may feel that her presence will make others uncomfortable.


  • Sometimes a woman going through infertility will not want to talk about it. But she still needs to know people care. Calling and leaving a message saying, “I hope you’re doing OK. We love you and are praying for you. Call if you want to talk,” is very considerate because there’s no pressure for her to call back yet she knows she hasn’t been forgotten.


  • Sending “Thinking of You” cards are nice. Here is an example of a note: “I just wanted to let you know that I am thinking about you and praying today and especially over the next three weeks. As I was thinking of you this verse kept coming to my mind and I think it is meant for you. “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you a hope an a future!” Jeremiah 29:11. God’s plan is to give you hope and not harm. Know that you are loved and cared for deeply!


  • Acknowledging that Christmas and Mother’s Day are difficult days is appreciated - but this is a tricky one. An example follows: at a family Christmas, my sister-in-law privately walked over to me and handed me a gift bag. It contained a children’s book with a written note on the inside cover: “This is a bedtime favorite of our girls. We hope it will be for your little one very soon! We love you and keep your baby-to-be in our prayers!” It meant so much that she took such a bold step to acknowledge our pain, but did it very privately so we were not put on the spot. She realized that while everyone else was happy and excited, we were struggling.


  • There are lots of books on infertility and miscarriage that can be helpful. Buying one and mailing it, along with a simple note, to someone you love who is experiencing infertility would be a very nice gesture.


  • If you know she has just had a negative pregnancy test or is having an especially difficult time, sending flowers with a note saying, “We love you, “or “We’re thinking of you,” is always a good idea.


Things to Avoid Saying:
(i've heard all but one of these)


  • “Just don’t think about it so much and it’ll happen.”


  • “You’re lucky. We would love to have some time without our kids!”


  • “If you wouldn’t get so stressed out about it, maybe...”


  • “I know exactly how you feel, it took us two months to conceive.”


  • “You can have a couple of my kids!”


  • “I’m having another boy. I was hoping for a girl.”


  • “This was an accident. I didn’t want to be pregnant in the summertime.”


  • “I can just lay in the same bed with my husband and get pregnant!”


  • “Maybe God doesn’t want you to have children for some reason.”


  • “Do you just not want kids?”


  • “Have you tried....”


  • “You’re Lucky, you don’t have to take the pill.”


  • “How much does it cost to do......(in vitro, artificial insemination, etc.)”

Monday, August 10, 2009

letter to the family...my first attempt at openness, before i knew anything...

Hello Family and Friends~

If we are sending you this letter, it is because we know that you have been close family and friends to us and have been so faithful to keep us in your thoughts and prayers. We treasure, and greatly appreciate, how supportive each of you have been to us -- with our first few years of marriage and especially within the last year with the roller coaster of changes that God has been bringing us through!

Recently, God has been breaking my pride to an issue that we've been wrestling with for almost three years now. Drew and I have been discussing starting our own little family for quite a while now, but thus far it has been a mental, emotional, and medical struggle. As some of you know, we had a VERY early term miscarriage a couple years ago, which actually has turned into an encouragement that we at least know we CAN get pregnant. We decided six months ago, to begin research to find a good doctor and pursuing professional help with our attempts -- which, praise the Lord, wasn't too challenging and so far we are very happy with him! After discussing my medical and birth control history with him, he started us on a list of tests, which we also praise God for -- typically they will tell you to monitor your attempts once seeking a doctors help for at least 12 months before beginning tests. We have no clear diagnosis as to the reason for the "infertility", thus far, but we have had xrays, blood work, etc... that have come back fine. However, I had one level come back signifying that the issue I had in high school (some of you know what that was) is an issue again. The doctor said we need an MRI and then I should be able to have medication to balance things and we should then have no problem getting pregnant. We are hoping and praying (however skeptical) that it is as simple as it sounds. As weird as it is to say "infertility", that is what it is. It doesn't have to be a permanent condition, but according to the definition...having trouble for at least a year...we qualify!

Over the course of the last two years, God has been truly growing a desire for a baby, in both of us. The more time passes, the more that desire, which God instilled in my heart, grows. God has been breaking down the walls I've put up regarding this sensitive issue; we've kept it very private between the two of us. But I've felt very convicted about being humble and vulnerable, and asking for prayer.

We are now trying to be open with family and friends, as well as eachother and our parents, which is remarkably difficult to do. It's an awkward topic, things are said that make one side or the other uncomfortable, or the encouragement is not taken correctly (as either non-helpful automated responses or a pain minimizing joke). I am reading a book called "When Empty Arms Become a Heavy Burden" (a very depressing title!), but the chapter I just finished is called "When Everyone Says the Wrong Thing". All the chapters start with a verse and this one starts with Proverbs 25:20 (which I had to read a few times before I really understood it) "Like one who takes off a garment on a cold day, or like vinegar on soda, is he who sings songs to a troubled heart." The chapter discusses (or actually lists) the many responses that seem to come from everyone in regards to this topic. I was surprised to find that I've heard quite a few of them from the few people we have discussed this issue with. "At least ...", "Maybe God...", "You have time", "You haven't been trying long enough", "You want kids? Borrow mine!", "It'll happen soon", (regarding miscarriage) "It's for the best", "There was probably a problem with the pregnancy"...and on and on. They all have a caption after them stating how the patient is feeling or what they think in response to these, most have to do with feeling that they are doing something incorrectly or not having enough faith: therefore it's their fault they haven't had a baby, or that people are trying to make the topic less awkward and minimizing the pain that they feel. ....DON'T GET ME WRONG!!!...we don't necessarily get offended by any of these responses, we actually keep telling them to ourselves and we do reassure ourselves constantly, trying to 'make sense' of this waiting game. We KNOW and truly believe that God has a divine plan for us and our "family-to-be", He always has and always will provide for us, and it is always in His perfect timing. It is, however, still a mental and emotional battle for us, regardless of what we "know". Hannah, in the book of I Samuel, is an excellent example of this. Talk about an emotional struggle. A DEEP and consistent desire for children, and her "rival" seems to be "fertile mertile". Hannah doesn't eat, sleep and weeps constantly -- God never gets angry over these emotions, nor did He say it was sinful for her to have them. I have been researching this alot when I get bored with my books, and I have found SO many GREAT women of the Bible that God used in their infertility, and then blessed them with children: Sarah -> Isaac, Rebekah -> Jacob and Esau, Rachel -> Joseph and Benjamin, Hannah -> Samuel, Elizabeth -> John the Baptist, Abram's wife Sarai was also "barren", as was Samson's mother......SO, after reading most of that chapter in my book, even I was thinking, What do people say in that situation if everythng is taken the wrong way?.......simply.......nothing......"We simply want them to be there...Silence, a touch, and simple assurances go a long way toward healing: 'I'm sorry', 'How can I help you?', 'I feel sad for you', 'How are you doing?', 'It's ok to cry'." (pg 81). Most of these sound very somber, and I don't think we are quite that broken feeling yet, but it makes sense and we can relate. It is a sensitive subject, but it's hard to understand how much so unless you've experienced it. So, in setting down my pride and fear of being asked questions that may make me emotional, we are requesting prayer and sensitivity to the issue, that we've kept close and private all this time.

We have worked on communicating with eachother, God, and our parents. Now that we are realizing that is potentially recurring issue with the tumor I had in high school -- which I thought was well behind me, we would like to request prayers for strength and patience as we continue to wait and hope. I feel guilty, in a way to be continually requesting prayer from all of you, however God has showed me that I'm bottling it up inside, and that that is what we as the body of Christ are here for...to lift eachother up in prayer. Drew and I feel so blessed with such a strong family of prayer warriors surrounding us. We know that regardless of what lies in our path or what God has for us as the outcome -- the course will be His will, in His timing. Though we are comforted by this understanding -- we are seeking His guidance and comfort for the journey we've been on and for the strong desire of our hearts.

We love you all and pray for you ALL continually. Thank you for all of your continuing love and support. (And thank you for enduring through another of my lengthy, wordy letters).

Drew and Megan


Phillipians 4:6-7 "Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus."

Isaiah 30:18 "The Lord longs to be gracious to you; He rises to show you compassion. For the Lord is a God of justice. Blessed are all who wait for Him!"

2 Corinthians 4:16 "Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day."

Psalm 84:10a "Better is one day in Your courts, than a thousand elsewhere..."


...I'll stop there...I could go on and on... :D